Video

The cognitive symptoms of MS

Jeffrey Gingold is the author of Facing the cognitive challenges of multiple sclerosis and Mental sharpening stones: manage the cognitive challenges of multiple sclerosis and was filmed in conversation with group of people who also live with MS and experience cognitive problems.

Jeffrey talks about how cognitive difficulties might affect people for whom they are symptoms of MS and shares his own experiences of problems with recall, finding places and saying words on the tip of his tongue.

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Picture of Phil Gilmore

Phil Gilmore said on Sun May 20, 2012 at 02:41 pm

Just read Sue Home’s comments re deconstructing sentences-read and the attendant difficulties of same. I too had noticed this, and brought it up to my neuro-cognitive therapist, complete w/ print-examples I had had problems with. While some, not many, seemed to be possibly MS-related, I was relieved when he (a PhD) had problems as well w/ several! Chalk up some of our cognitive-issues to the communicator’s ineptitude, eg: the general writer’s-fascination w/ awkward ‘parentheticals’ (these days). As well, here in the USA, I often note what may well be a lack of true-fluency w/ the english-language on the part of the writer. One thing about having MS that is a certainty as I experience it: we tend to think the issue is ‘us’ - all too often - when indeed it often is the ‘other guy’!

Picture of Kristina Lindahl, Göteborg, Sverige

Kristina Lindahl, Göteborg, Sverige said on Wed Dec 1, 2010 at 08:22 am

A very nice experience to meet Jeffery Gingold, the moderator and the charming group!
I work as a journalist (in Sweden) and have had MS for 30 years. I don´t have problems in an interview situation: to ask questions and write down the answers. But when it comes to easy talk at a party or with friends, I loose words and the thought I had from the beginning, can suddenly be gone. Not to mention names.
In these situations, I try to avoid names, or, I have repeated the names, many times, before I say what I want to say.
But of course, I don´t talk as much as before, I don´t feel comfortable being spontaneous.
But I felt comfortable seeing and listening to these fantastic people, and proud to say - I have MS just like them.
Kristina, Sverige

Picture of immoriamy

immoriamy said on Mon Sep 27, 2010 at 12:08 pm

interesting, bookmarked and link from my blog.

Picture of Diane Vanessa Bell

Diane Vanessa Bell said on Sun Jun 6, 2010 at 01:51 pm

If you read Jeff’s first book"Facing…etc.” he goes into very specific cognitive problems that he had with MS and work. I think he is trying not to make his examples too complicated for his MS audience.

Picture of Lynne Lezer

Lynne Lezer said on Fri Jun 4, 2010 at 02:33 pm

Many,many thanx to Jeffrey Gingold,I watched him talking beautifully to a MS group,I feel a lot better about myself now(im not the only one with MS in the world:))
  I also read Sue Hornes reply to Jeffrey & agree somewhat to all she said,though ive never read the Guardian.
  Ive brought up three children,all have degrees,so I guess I did something ok.
  Thank you Jeffrey & Sue,for making me feel like I used to feel,for a little while anyways.
    Lynne♥

Picture of Sue Horne

Sue Horne said on Sat Feb 13, 2010 at 07:36 pm

This video didnt make me feel reasssured - it actually made me feel that my cognitive degeneration is far greater than most. I read the Guardian. I came top of my year in several university modules way back in 1980, I used to be a secondary teacher and then adviser and I trained whole secondary school staff single handed for a full day less than 6 years ago. When I read the Guardian now I cant follow lots of articles because I cant remember what was being said if there are several parts to the sentence. I may start to tell my husband about the interesting piece I read or item I listened to but I cant rember what it was about. It is actually more severe than Jeff is saying on this video and on this site generally. Is this because he is being simplistic as a trainer or am I just misunderstanding what he is saying. Which is exactly my problem much of the time!

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